girls with CAH are born with a vagina, but sometimes it is difficult to
establish the position or size as these can vary considerably. The vagina may be covered with a small membrane and the
clitoris is nearly always enlarged. Some
girls with mild forms of CAH, do not need any surgery.
timing of any surgery is dependent on the degree of virilisation and the
feelings of the parents after discussion with their specialist as to the options
available. In order to feel
confident of decisions about surgery a second opinion may well be helpful.
Surgery to reduce the size of the clitoris, a clitoroplasty, and to make
a larger vagina, a vaginoplasty, can be done at any age and opinions vary as to
the best timing.
on the clitoris is relatively straightforward.
The aim of a clitoral reduction is to reduce the erectile tissue and
preserve the nerves and blood vessels to the glans, the tip of the clitoris, so
that it remains sensitive.
required for the vagina and urethra in more complicated and varies considerably.
If the vagina is positioned high near the bladder there can be the possibility
of damage to the neck of the bladder, which controls the release of urine.
Great care must be taken as any damage to the bladder could cause
incontinence. Pelvic floor
exercises can be of great help with any minor weakness with the bladder control,
and will also help to strengthen the vaginal walls.
examination just before the start of menstruation is often carried out to
establish that the vagina is able to allow the use of tampons and also to make
sure that the vagina will be big enough for comfortable sexual intercourse.
Some specialists prefer to do this examination under a general
anaesthetic, which though not strictly necessary, can make it less embarrassing
for the young adult.
women may require surgery later in life for an enlarged clitoris or because of a
small vaginal opening. It is rare
for the clitoris to enlarge in adult life unless the control of CAH is very poor
for a long period of time so that high testosterone levels cause the growth of
the clitoris. Despite earlier surgery, the clitoris may remain relatively large
in some women.
adulthood, vaginal surgery may be required to ensure comfortable sexual
intercourse and to reinforce confidence in feeling feminine.
Even if surgery on the vagina has taken place in childhood, it is not
unusual for the opening of the vagina to be small. There are many surgical procedures using different methods to
enlarge and line the vagina. ‘McIndoe’
techniques use skin grafts from the buttock or thigh to form a ‘tube’ like
new vagina. Alternatively, a part
of the colon can be transplanted to the vaginal space.
Women needing vaginal enlargement should have information on the various
techniques available and be allowed to discuss all the possibilities. For
example, the two surgical techniques described above leave scars and
increasingly experts feel that the less invasive use of dilators is best for
women even for those who have a very short vagina. There are some surgeons who feel that vaginal surgery for an
adult should only be considered if there is already an established relationship.
The alternative view, often held by women themselves, is that early
surgery is necessary for sufficient confidence and self esteem to establish a
now has much improved over the past 30 years and the involvement of patients in
decisions affecting their care has increased.
Adults, who had surgery many years ago, may experience more difficulties
from the effects of surgery, than those who have had more up to date operations.
For instance, the practice of complete clitoral removal, clitorectomy,
was once quite common. Alternatively,
some erectile tissue of the clitoris might have been left secured under the skin
in front of the vagina, this can be extremely painful during intercourse. Also, the glands that secrete the vaginal lubrication prior
to and during intercourse might have been damaged making is necessary for a
lubricant, such as KY jelly to be used for comfortable intercourse.
Some women notice a build up of scar tissue after more than one operation
on the vagina. This can cause lack
of sensitivity within the vagina or pain during intercourse as the scar tissue
is not pliable and does not stretch easily.
Oestrogen cream applied to the vagina or the use of dilators can overcome
some of these problems
most women, a small vaginal opening or shortened vagina can be improved with
dilators of various sizes that will allow successful sexual intercourse.
By applying gentle but firm pressure to the vaginal opening by inserting
a plastic dilator and, over a period of time, gradually introducing a larger
size of the dilator, the size of the vagina will increase.
Within months a significant increase in size can be achieved.
For those women who are not sexually active, the vagina will tend to
contract if dilators are not used regularly.
It may be necessary to keep up a regular, alternate day use of dilators
for ten minutes or so. Some women
feel less happy with the dilators and prefer to use their fingers.
However, this method takes time, perseverance, motivation, and the
ability to feel comfortable in touching the genital areas. Also, some women with
CAH may have relatively small fingers; if there is a partner, their help may be
of benefit until intercourse is comfortable.
The use of a dildo may also be acceptable.
Intercourse itself can gradually increase the size of the vagina but it
takes an unusual degree of self-confidence to feel comfortable with this
women find that everything to do with the mechanics of sex is very embarrassing.
Teenagers, in particular, may find it difficult to find support and
understanding if their parents find this uncomfortable territory.
Extreme sensitivity is needed so that they can discuss how they can
improve what they may see as an inadequacy of their body.
An experienced sex therapist might be useful here.
It must be remembered that women without CAH have genitalia in all shapes
and sizes. The penis is a very
adaptable organ, which also varies greatly in size.
It may be that the surgical and psychological issues of sex make it difficult for women with CAH to achieve an orgasm. The complete removal of the clitoris, pain on intercourse, poor vaginal lubrication or lack of self-confidence may all contribute to a failure to achieve orgasm. A gynaecologist with specialist experience or sex therapist should be able to help overcome these problems.
G. S. Conway 1999
This Page was updated 30-Apr-2006
These pages are maintained by firstname.lastname@example.org
© 1999 - 2006 Adrenal Hyperplasia Network