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Links to other sites of Interest

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CAH Support Group Links

CAH Support Group of CLIMB    Provides support for families, children and young adults with CAH 

 Australian CAH Support Group    Provides support for families, children and young adults with CAH

Riksföreningen för Adrenogenitalt Syndrom    Swedish CAH Support Group (site is in Swedish)   new site

Congenital Adrenal Hyperplasia Support Group New Zealand (CAHNZ Trust) New Zealand CAH Support Group Email: Telephone: +64 3 3584507

USA CAH Web    Support for families

USA CAH Message Board

CAH Personal Stories Web Site

CAH Adult Message Board - USA


CAH & Other Information Booklets

PDF of CAH Adult Information Booklet by Dr G. Conway  CAH booklet Requires 

Various Information Booklets by Dr G. Conway 



AISSG - AIS Support Group UK    Provides support and information on Androgen Insensitivity Syndrome and associated Intersex conditions

Mixed Gonadal Dysgenesis Support Group 


Other Support Group Links

CLIMB - Children Living with Inherited Metabolic Diseases    Provides support for all metabolic diseases

Child Growth Foundation

GIG - Genetic Interest Group    Provides information and support for various genetic conditions

CaF - Contact a Family

The Pituitary Foundation    Provides information and support for Pituitary conditions

The Nederlandse Vereniging voor Addison en Cushing Patiënten (NVACP) The Netherlands Support group for Addison's and Cushing's (Will be covering CAH soon) (web is in Dutch and English)

ROSA - Rokatansky Support & Advice  Support for MRKH (E-mail only) 

ASG - Anorchidism Support Group    Provides information and support for congenital absence of testes

NZAN - The New Zealand Support Group for Addison's Disease

ADSHG - Addisons Disease Self Help Group - The UK Support Group for Addison's Disease 

Association SurrénalesThe French Support Group for Adrenal Conditions including CAH, Addison's Disease and Cushings Disease 

The Daisy Network - Premature Menopause Support Group 

Freshwinds - Supporting People Living with Life Threatening & Life Limiting Illnesses

Special Abilities - A self-help information organisation for parents/carers of special needs children we support.  Based in West Yorkshire and support families locally and nationally


Hospital Links

University College London Hospitals  

Johns Hopkins Hospital Web site for Intersex & CAH     

BC's Children's Hospital - Endocrine & Diabetes Section


Dilator Manufacturers

Amielle Dilators (Owen Mumford)    The site of the company that manufactures and markets the Amielle vaginal dilators


Women's Health

Womens-Health    A UK site


Medical Societies and Royal Colleges

BSPED - British Society for Paediatrics, Endocrinology & Diabetes

RCOG - Royal College of Obstetrics & Gynaecology

Britspag - British Society for Paediatric Gynaecology     

BAPS - British Society for Paediatric Surgeons 

Society for Endocrinology 


General Health

Well-Aware    A general medical information site with lots of very useful information in easy to understand format


Natural Health

Bioterrain    A natural health information site with lots of very useful information on alternative health treatments 


Higher Education & Web Search

Guide for Graduates    A source of up to date information for Graduates Getting Your Doctorate

KwMap    A source of links  KwMap



Entrez - Pubmed    A source of up to date medical reference material  


Medical Journals

BMJ - British Medical Journal    A source of up to date medical articles 

The Lancet - UK Medical Journal    A source of up to date medical articles



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This Page was updated 05-Jun-2008

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