CAH Information

Introduction.

This brief guide to the symptoms and treatment of the Congenital Adrenal Hyperplasia has been produced through discussion between support groups - the child growth foundation, the adrenal hyperplasia network and the congenital adrenal hyperplasia group and medical specialists - Dr Gerard Conway and Dr Richard Stanhope.

Although every effort is made to achieve accuracy, errors and the results of new research may invalidate some of the information.

Dr Gerard Conway

The Middlesex Hospital

Mortimer Street

London W1N 8AA

Foreword

Growing up with a medical condition such as Congenital Adrenal Hyperplasia (CAH) can be very difficult and for some a lot of support is required. The problems of having CAH can be considerably reduced if the right type of information is made available and discussed sensitively. As young adults the issues of sexuality and fertility need early discussion so that adult life can be approached with confidence. These issues can be difficult for some parents, children and doctors.

As with any medical condition there are wide variations as to how each person is affected by CAH and not all that is in this booklet will be relevant to everyone. For instance, CAH has different effects on women compared with men. This booklet describes how some adults see the condition of CAH affecting their lives. Addressing these feelings enables them to find ways to deal with them. Further support may be found through the family, friends, a support group, a counsellor or a doctor. A specialist with a particular interest in the problems associated with CAH is needed at times.

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This Page was updated 30-Apr-2006

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