Welcome to the

Web Site

of

Adrenal Hyperplasia Network

The Adrenal Hyperplasia Network UK has been set up to provide support for all ages with Congenital Adrenal Hyperplasia (CAH), particularly adults and teenagers.

We are currently setting up an International e-mail discussion group and this web site www.ahn.org.uk is being developed. Articles will appear on various issues of CAH including Endocrinology, Gynaecology, Surgery, Urology, Fertility and Psychology.

We like to work closely with the medical profession having 9 medical advisors and are currently involved with some research into improving treatment. We are also writing a book on "CAH Surgery and Dilatation" aimed at GP's, Nurses, Adults, Teenagers and Parents.

We have contact with International Support Groups in Sweden, Australia, USA, New Zealand, France, Finland, Holland. In the UK we work closely with AIS Support Group UK, GIG, ROSA, Contact a Family and the Child Growth Foundation.

We provide support by letter, e-mail and meetings. Regrettably we cannot currently provide telephone support. As the network grows, we hope to be able to raise both awareness and funds not just for support but also CAH research. We are building up a library of information on CAH from all over the World, and are working on information packs and have a booklet specifically for Adults & Teens with CAH written by Dr G. S. Conway and also forms a major part of this web site.

Melissa Cull

Founder

Adrenal Hyperplasia Network Homepage Intro to info What is CAH Different Types Treatment of CAH Adrenal Crisis

Issues for M & F Issues for F Gender Issues Surgery Social Issues Issues for M

CAH Info Booklet PDF Psychology Human Rights Info for Media Articles Medical Advisors Research Personal Stories AHN Journal Booklist Links

This Page was updated 06-Jan-2008

These pages are maintained by webmaster@ahn.org.uk